NEW UCI PROGRAM CREATES OPPORTUNITY FOR ORANGE COUNTY RESIDENTS
TO PERSONALLY ASSIST IN FIGHT AGAINST DEMENTIA, CANCER, AND OTHER DISEASES
New online tool seeks to engage community in clinical studies; Matches the right study for the right participants
November 2016—Irvine, CA—Potentially lifesaving research is being stalled because the medical community cannot find participants for research studies. In fact, eighty percent of clinical trials fail to meet recruitment goals making it harder for researchers to advance care in some of today’s most dreaded diseases, like Alzheimer’s and Cancer. UC Irvine Institute for Memory Impairments and Neurological Disorders (UCI MIND), in coordination with the UCI Institute for Clinical Translational Science and UCI Health, is making it easier for the public to learn about ongoing trials and volunteer to be contacted.
UCI has launched the UCI Consent 2 Contact (C2C) Registry, a new tool designed to help match adults in Orange County with clinical research studies that interest them and for which they are appropriate.
Researchers at UCI are at the cutting edge of finding preventions for dementia, treatments for cancer, and ways to help people live longer, healthier lives. These exciting and important studies face a critical challenge—the need to enroll participants in a timely manner. If studies enroll more rapidly, scientists can answer questions faster, improve medical care and potentially find a cure for diseases sooner.
Dr. Joshua Grill, a researcher at UC Irvine, leader of the ICTS Recruitment and Retention Unit, and codirector of UCI MIND believes, “We are at the forefront of finding solutions, but we need the help of the community to make these promising studies as successful as possible. With the C2C Registry, it’s easier than even for people who want to do their part to help find preventions, or potentially even cures, for disease.”
Signing up with the C2C Registry is easy. Interested individuals can visit the website to learn more about the registry and follow the simple steps to enroll. The C2C Registry is confidential, private, and safe and does not require participants to be a patient at UCI. There is no obligation to join in any studies; the Registry simply enables researches at UCI to inform individuals about clinical trials or studies that align with their personal cause or interest. Participants can also withdraw at any time.
Steve O’Leary, a recent enrollee to the C2C Registry says, “Our family has been touched by both cancer and Alzheimer’s, and I want to do anything I can to help prevent others from getting these diseases. Signing up for the registry is simple and only requires participants to provide their health background. I am very excited about what UCI MIND and UCI Health can accomplish, as they conduct some of the best clinical trials along the west coast and across the country.”
To help make a difference in clinical research, and help find preventions and potential cures for disease, visit www.c2c.uci.edu to join the UCI C2C Registry today.
About the UC Irvine Institute for Memory Impairments and Neurological Disorders (UCI MIND)
The UC Irvine Institute for Memory Impairments and Neurological Disorders (UCI MIND) is internationally recognized for its research accomplishments in disorders of the brain, particularly those that are age-related. UCI Mind is the University’s center for aging and dementia research, with its faculty seeking to understand the causes leading to neurological disorders such as Alzheimer’s disease, frontotemporal dementia, Lewy body dementia, and Huntington’s disease. For those suffering from age-related memory problems, its goal is to develop improved means for effective diagnosis and treatment and to provide help to families and caregivers. UCI MIND is home to one of 31 Alzheimer’s Disease Research Centers funded by the National Institute on Aging and on of 10 California Alzheimer’s Disease Centers funded by the California Department of Public Health. For more information, please visit www.mind.uci.edu.